Let's talk meds

They say "a picture is worth a thousand words." I guess you could say this one really is.

This is a picture of Mini Me helping momma out by fixing Moo's nightly concoction with her dinner.  God Bless this little girl.  A little nurse and she didn't even go to school for it. She wants to help. so I let her. (With supervision of course 😉)

This is sometimes what I see when I close my eyes. I lay my head down and try to recount my steps and make sure the child got all of her daily doses. I have nightmares that she was overdosed or somehow she didn't get what she was suppose too. Sometimes after we've come home from a long day, I am reminded that I forgot to stop at the pharmacy and pick up a refill. So back out I go.

Let's talk diagnosis

Maddie has Chromosome 9 Ring.  
Ring 9 is a rare chromosome abnormality. A brief description can be found @ 
https://rarediseases.org/rare-diseases/chromosome-9-ring/ if you are interested in learning more. 
This chromosome disorder is so rare they have documented the affected populations as such: affecting males and females in relatively equal numbers. Since the disorder was originally described, more than 12 cases have been reported in the medical literature. Since this documentation I believe a few more have been reported. None the less very rare.

With that being said. She also, suffers from Hypothyroidism.  She has been on "Synthroid" since she was 1 day old. The Thyroxine is the main hormone secreted into the bloodstream by the thyroid gland. Our Thyroid hormones play vital roles in regulating our body's metabolic rate, heart and digestive functions, muscle control, brain development and maintenance of bones. Synthroid is a prescription medication that can help treat hypothyroidism. The active ingredient in Synthroid is called levothyroxine sodium. Synthroid can help restore thyroid hormone balance. It is a man-made thyroid hormone identical to thyroxine, the hormone that's naturally made by the thyroid gland.

More information can be found @ https://www.synthroid.com/hypothyroidism/definition

And as if she didn't deal with enough. She has Lennox-Gastaut Syndrome. If you've never heard of it?  Here is a brief description:

• Lennox-Gastaut Syndrome (LGS) designates a type of epilepsy with multiple different types of seizures.
• Intellectual development is usually, but not always, impaired.
• In about a quarter of children, no cause can be identified.
• Seizures usually don't respond to seizure medications.
• Accounts for only 2 to 5 percent of childhood epilepsies.
• Usually LGS persists through childhood and adolescence to adult years.