Monday, July 17, 2017
Traveling Isn't Easy
It is hard and sad traveling with a non verbal child who craves routine. Travel 7.5 hours in the car. Child is ok, because riding in the car is routine.
Arrive at destination = seizures, stomach ache, diarrhea, confusion, irritation, knowing she wants her room.
Arrive at destination = seizures, stomach ache, diarrhea, confusion, irritation, knowing she wants her room.
Praying she gets some rest.
No rest = increased seizure activity, illness, sometimes fever, like her body can't take the stress. Heartbreaking!
No rest = increased seizure activity, illness, sometimes fever, like her body can't take the stress. Heartbreaking!
Co sleeping: She hates this, she knows I'm there. It irritates her, but I won't leave her because ^^^^^And she needs me, as you can see...
Life always lends difficult circumstances and choices. So my choice was take a chance. Maybe this time will be different. Oh how I pray for those moments!!!!
Sometimes, we realize it's just to much for her and let her stay in her comfort zone. Praying it's the right thing. But with Moo as long as she's loved and cared for there isn't a wrong...
Sometimes, we realize it's just to much for her and let her stay in her comfort zone. Praying it's the right thing. But with Moo as long as she's loved and cared for there isn't a wrong...
So today: I'll look for little glimpses of happiness and be grateful that she is with us. And hope her sisters see that life is better together than leaving her behind. I choose love, and laughter, I choose not to be sad! I choose to give it to God and pray for a blessed day!
I Love you Moo!!!!!
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